Hello everyone, it is time for what it seems is my yearly Luke update. I did not know what I was going to do with this blog when I...

Today is St. Patrick's Day. Two and a half years ago, I celebrated this day far differently. Today, and especially due to our certain...

Another year over, and yet again, an incredible accomplishment. This year, once again, we raised over $41,000!!!! I hope that everyone...

Luke’s past 8 months #travelingbaby #seaverautismcenter #phelanmcdermidsyndrome #localsphorluke October 25, 2022, Luke and I hopped on an...

CureSHANK is an organization founded by parents of children with Phelan-McDermid Syndrome. Their belief, as is mine, that a treatment is...

Luke was born a happy "healthy" little boy on June 28th, 2019. I had an uneventful pregnancy and delivery. He had wonderful scores and we...

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